Caregiving
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Education and Support Programs for Caregivers
Author: Ronald W. Toseland
language: en
Publisher: Springer Science & Business Media
Release Date: 2011-03-04
For many, caring for a chronically ill family member is “the right thing to do”, but it is also often a source of emotional hardship, physical stress, and social isolation. In response, skill-building, coping, and psychoeducational programs have emerged to help caregivers meet the changes and challenges in their – as well as the patients’ – lives. Education and Support Programs for Caregivers reveals the diversity of the caregiver population as well as their experiences and needs, and it introduces an empirically solid framework for planning, implementing, and evaluating caregiver programs. The book synthesizes current trends, exploring the effectiveness of different types of programs (e.g., clinic, community, home based) and groups (e.g., peer, professional, self-help), and how supportive programs lead to improved care. Coverage includes: Improving service delivery of education and support programs to underserved caregivers. Cultural, ethnic, and gender issues in conducting caregiver education and support groups. Utilization patterns (e.g., a key to understanding service needs). E-health, telehealth, and other technological developments in caregiver services. Evaluating the effectiveness and sustainability of programs. Recommendations for future practice, training, policy, and advocacy. Education and Support Programs for Caregivers offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.
Insights into the Caregiver Perspective: Involvement, Well-being, and Interventions
The range, duration, and intensity of informal caregiving across different illnesses and disabilities have increased in the 21st century due to an increase in longevity and de-institutionalization in most countries. Caregiving is demanding and hence can be stressful in terms of time, effort, and financial requirements, depending on the nature of the illness or disability, the relationships between the person in need of support and the caregiver, and the role played by available health and social care services. However, research evidence has demonstrated that it can be also rewarding, and enables a different type of bonding than was the case before caregiving became a necessity.
Caring for the Family Caregiver
"Caring for the Family Caregiver is an extensive practical tool kit for health care providers across the healthcare continuum. Regardless if it is a mother caring for a child with a developmental disability, a wife caring for a husband with a long term chronic illness, or a daughter sitting at the bedside of her father who is enrolled in hospice, family caregivers are the silent "other patient" in the health care drama. Healthcare providers who do not attend to the needs of the caregiver not only inflict interactional suffering, but dilute their treatment by not engaging the caregiver as a partner. In fact, they may unintentionally do harm as the caregiver flounders and thus patient treatment fails. As noted by one dying cancer patient in an educational YouTube video of his cancer journey, "there are two patients not one." If we are to eliminate the interactional suffering experienced by family caregivers, we must train both the caregiver and the health care team for the important interaction and roles that are required for the successful care of the patient. Caregivers lack information, skills, and emotional support for the tireless task they are volunteering for. They need to be taught how to advocate for themselves and their patients and how to best communicate with the health care team. Likewise, health care providers have the skills and knowledge to provide outstanding patient centered care; however, they are not taught the importance of the family caregiver, nor do they always understand that experience or how to help"--
